Kayne's story

Support kids like Kayne

People expect kids to be happy and healthy - but not all kids are.

- Danii, Kayne’s mum

Bouncy, bright-eyed Kayne was a typically playful and curious toddler - until he started displaying worrying symptoms. Mum, Danii, took him to the local hospital time and time again, only to be told it was 'just reflux' - until one day, she refused to leave without an answer.

Something's wrong

Shortly before he turned two, a normally happy and playful Kayne suddenly became unsteady on his feet. He would sit up and vomit in the morning and screamed in pain at night

I knew something wasn't right - but I never thought it could be cancer

- Danii, Kayne’s mum

A nightmare wait

A CT scan at the local hospital revealed a mass in Kayne's cerebellum and he was put straight into intensive care. Danii had to wait six agonising weeks for the pathology results.

Those six weeks were a living nightmare. Kayne had to learn to walk all over again.

- Danii, Kayne's mum

Diagnosis

Kayne was diagnosed with an Atypical Teratoid Rhabdoid Tumour (AT/RT) - a very rare type of brain cancer. He was rushed to Sydney Children's Hospital, Randwick for emergency surgery.

I was told that if Kayne's tumour had been left untreated, he would have only had two weeks to live.

- Danii, Kayne's mum




Treatment

Kayne suffered through a gruelling 18 months of chemotherapy and multiple brain surgeries. Danii stayed by his side for every heartbreaking moment of it all. Tragically, the very treatment that saved Kayne's life left him with permanent brain damage

 

Enough is enough. We have to give these children a better quality of life.

- Dr Joshua McCarroll, Research Leader

Kayne today

Kayne is now 7 years old but the treatment that saved his life, also changed it forever. Kayne can't chase after a soccer ball with his friends and he struggles to join in with their jokes. His treatment affected his balance and motor skills as well as his speech and hearing.

With 70% of survivors suffering lifelong side effects, we know we need to find safer, better treatments for children like Kayne. But we can’t do it alone; we have the researchers, we have the technology and we have a passionate team determined to make this happen. All we need now, is your support. 

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