OUR TEAM PROGRESS
19
Team
members
$54,137
Raised for kids
with cancer
1,595km
Conquered
together
Please help find a cure for the deadly DMG/DIPIG
You can follow Effie's story on IG @Flowers_For_Effie
www.instagram.com/flowers_for_effie/
I am taking part in the 86k for a Cure and dedicating my efforts to my 4 year old daughter Effie who is currently fighting Diffuse Midline Glioma (DMG) and dedicating the funds raised by Effie’s team to Levi’s Project who are dedicated to raising funds for research and clinical trials for children with DMG/DIPG. I want to pay it forward to the next family who is faced with this horrible disease. Our team is OPEN so if this story resonates with you and you would like to join our team we would love to have you. If you feel you can give up something this month to donate then please do so through the link to this page or through my page.
On every run I will be picking a flower for Effie and
posting it @Flowers_For_Effie on social media with the link to this page and I
encourage you to do the same, even if you don't join the team.
Effie was diagnosed on the 10/09/23 with a tumour in her brain; 8 days later
and after 3 brain surgeries her neurosurgeon delivered the most devastating
news that there was no known cure for Effie's disease, surgery was not an
option. Our world came crashing down.
We were told that she has a DMG in her right thalamus; this is a rare and very
aggressive tumour that is generally not diagnosed until it is at stage 4. In
Australia, the only registered treatment for DMG is radiation therapy; Effie
took that path as it has the highest chance of increasing life expectancy,
although there was a 20% chance her tumour wouldn’t respond at all. If
radiation therapy was unsuccessful, Effie would not have made it to the
Christmas of 2023, if it was successful, the average life expectancy is a mere
9 months.
Thankfully for Effie, radiation therapy went as well as it could and gave Effie
some much deserved extra time. We are using that time to create as many fun
memories as possible and have chosen to enroll her into a clinical trial that
is 800kms from home. The pressure of choosing the right path forward is
enormous, if a trial takes 3 months to get through the first stage, that may be
30% of her remaining time. Being far from home means reduced time with friends
and family.
In Australia, 26 kids are diagnosed every year and this disease is known for
behaving differently in each child making it an extremely complex disease to
draw conclusions from research, let alone effectively treating the disease.
What is effective for one child isn't necessarily effective for another,
however, worldwide there are a large number of trials being undertaken, all
aimed at giving these kids a fighting chance.
Thankfully, Effie has been given the opportunity to be enrolled into a CAR-T cell trial here in Sydney Children’s Hospital at Randwick, right next door to CCIA. She is just the second child to be treated here with this ground breaking technology. Basically, part of Effie’s immune system has been modified to target and kill the tumour cells in her brain. Effie has undergone her first infusion of CAR-T cells and we have just received the results back on the 29th of February 2024. Incredibly we have seen a 30% reduction in the size of her tumour over the 7 week period she has been in the trial, obviously we are over the moon with this news. She still has a long road ahead as this last scan shows a new unidentified mass in a different location in her midline, the unpredictability of this disease leaves you with little control of your life.
The CAR-T cell therapy trial has been funded and set up by Levi’s Project. Levi’s Project was started and is run by a family who sadly lost their little Levi all too soon to DIPG, a fate that Effie is also facing. They have made it their life’s work to raise funds and direct them into research and clinical trials here in Australia so families have another option and do not necessarily need to travel abroad. Our family is very grateful for the fundraising work that Levi’s Project has achieved in raising $4.6M over the past years, which is why the Flowers For Effie team is dedicating their 86k in March to Levi’s Project through the CCIA.
You can find their story here @levisproject
www.instagram.com/levisproject/
Please support me to help give Effie and all kids diagnosed with DMG/DIPG as many Christmases as we possibly can. We have set up an IG account so we can support Effie and raise awareness about DMG in children. If you can’t donate then simply share this page and our Instagram page is all that I ask.
You can find her story here @Flowers_For_Effie
www.instagram.com/flowers_for_effie/
Thanks for reading.
Our Achievements
Team Updates
Flowers For Effie new goal
Thursday 14th Hi AllFirst of thank you for your support by either donating or joining the Flowers For Effie team, the team is coming in 3rd place on the leader board! The team has done much better than I ever expected so thank you.
When we set the target we wantedto make sure it was achievable and reached that target in a few days! I've decided to lift the target to see if we can cover the cost for one child being enrolled in the Levi's Catch trial, a rough break down is below.
$10k to enrol each patient into Levi's Catch trial
$15k for the 3 CSF tests per infusion to measure CAR-T cells
$5k per infusion to check the general health of CSF
On top of this there are MRI scans, anesthetics, medications and hospital stays to name a few, but the above costs are specific to the trial.
So the new target is $30k, let's see if we can get there!
Dom
Thank you to our Sponsors
$3.02k
Effie And Safa
$2.02k
Figgy
Sending love from Albury. X
$2k
Pedemonts Match
We’re proud to support your challenge to help kids with cancer.
$1.8k
Thyra Community Hub
Well down Dom and all supporting! Go team 💜
$1.11k
Luke And Kate Barlow
Good Friday gathering ran and walked 202 Km's. Distance covered by Dom, Ryan and Luke for March, 342.1 Km's. $2 per Km doesn't seem much but its just like your running, Small steps can make a big difference. You guys are amazing and always in our thoughts and prayers. Big hugs to you and your family.
$1.02k
Penni & Tim Douglas-garden
Run Dom Run
$1.02k
Griffos
XX
$1.02k
Alison Bourne
$1.02k
Gia & Ada
$1.02k
Hg Project Co
$1,000
Pedemonts Match
We’re proud to support your challenge to help kids with cancer.
$1,000
Bourne Family
$865
Andrea Vagg
$865
Pedemonts Match
We’re proud to support your challenge to help kids with cancer.
$520
Danni Falconer
🩵🩵
$520
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$520
Emily Kristine Pedersen
$520
Andrea, Ryan, Abi, Bella Vagg
We all missing you all and think of you all the time, can’t wait to see you soon
$520
Dodgshun Medlin
$516
Jerome Shirley
$501
Figgy Salon
Sending lots of love and picking every flower we see too. X
$501
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$500
Kate Wall
You’re a good egg Pete x
$500
Relieve And Revive Physiotherapy
May the force be with you.
$500
Lila & Heidi Downs
$500
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$500
Mulcahy Mechanics
$435
Andrea Vagg
$435
Pedemonts Match
We’re proud to support your challenge to help kids with cancer.
$317
Dallas Ludeman 0903 5429
Well done mate, enormous effort for a normally injured, retired sports star!
$317
Alison Bourne
$317
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$264
Colin Gair
$264
Anonymous
Great job Ryan!!
$264
Effie & Safa Garden
Love you
$264
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$264
Rinaldi’s
$264
Penny,ross,ruby And Poppy
What an incredible team . You guys are amazing . 💕💕💕Sending all our love . 💕💕💕
$264
Jeff Downs
Great job mate
$264
Dan And Steph Wilson
Inspiring guys, thinking of you so much
$261
Michael Diamond
$261
Skip & Jarvie
Great work Dom!
$261
Trav And Katy
❤️
$261
Pedemonts Match
We’re proud to support your challenge to help kids with cancer.
$261
Belinda And Rob Kerr
Great work Sue. We wish Effie and her family the very best of luck
$250
Richard Callander
Always a good man Pete. Good Luck.
$250
Chops & Sarah Mclean
Great effort Downsy for a beautiful cause!!
$211
Peter Allen
$211
Helen & Peter Sobey
$211
Barb & Gary O’dowd
Wear Effie’s friendship bracelet with pride Pete.
$211
Caleb Lewis
$211
Emma And Dan
Great work Dom!!
$211
Khia
Go mum and all the team. We love you Effie
$210
The Millers
Excellent stuff team! Xxx
$209
Joel Riddle
You da man Peter
$203
Facebook Donation
$203
Facebook Donation
$201
Two Billy Buttons
$201
Pedemonts Match
We’re proud to support your challenge to help kids with cancer.
$201
Jess Rankin
Go Granny 🏃♀️
$200
Sam Lewis
Great cause and good luck mate
$162
Kathryn Douglas
Thinking of all of you every day with lots of love, prayers & big hugs.
$162
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$158
Phandell
Inspirational. Sending all our love xx
$158
Dan Lassen
For Effie and all the others. Our hearts and prayers go out to you - Dan and Alex Lassen.
$158
P Grimwade
An amazing gesture for beautiful Effie, Downsy X
$158
Anonymous
$158
The Obriens
Great work Courts 🌺💕🌺💕
$158
Jennifer James
$158
Highton Automotive
$158
Katrina Shirley
Get running Gabs!
$158
Kate & Jimmy Thomas
Go Dom! Here supporting you every step you take!
$157
Georgi Kellock
Awesome work team Garden! Thinking of our dear friend Effie often. Your strength to get this done, share your story and advocate whilst you all face this incredibly tough journey, is so very inspiring. Big hugs and lots of love from Georgi, Mark and Gracie xx
$155
Lisa Downs
Run strong buddy! A great cause to support. Lots of love to Effie and family!
$153
Anonymous
$152
Facebook Donation
$151
Codie And Jack
We love Efffiee !!
$151
Anonymous
$151
Pedemonts Match
We’re proud to support your challenge to help kids with cancer.
$150
Anonymous
$150
Helen Spinks
$150
Jacqui Millar
$127
Andrea Van Niekerk
$127
Gabby Switala
$125
The Nolans'
$125
Courtney Wood
$113
Ryan Mulcahy
$113
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$111
Tully Spinks
$111
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$111
Kate
Your little girls are both beautiful. Hoping Effie’s treatment keeps working.
$111
Mike, Anna And Monty
Incredible Dom, all our love to you Effie, Rosie and Safa x
$111
Tom Fawcett
Well done Harry. Great work
$111
Deb & John Mckindlay
Great cause Sam. Hope it goes well.
$111
Jackson Cook
Well
$111
Tim Griffin
Go Sam
$111
Dan Casey
$111
Anonymous
$111
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$111
Phoebe Chandler
Absolute ledge, Dom! Sending all my extra leg power your way!
$111
Ross Berryman
$111
Sheila Douglas
Good on you Sam😃
$111
Brumby-rendell’s
Great work everybody! Love to Effie and her family ❤️
$111
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$111
Harry And Em
Great work Stephie, our thoughts are with the family xx
$111
Maartje Jansen
$111
Teegan Meade
$111
Hannah & Joe
Great work H!
$111
Janelle Couch
Good luck and well done on supporting such a great cause xx
$111
Robyn Wood
$111
Pat Helper
$111
Wayne Dooley
Good job :)
$111
Ange Walsh
Go Captain! ❤️
$111
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$110
Julie Griddin
$110
Kristine Halesworth
Welldone!
$110
Jasmin Ervin
🩷
$110
La Madre Bakery
Good luck Liz and Darcy for a very worthy cause.
$110
Tracy Savva
Sending lots of love and strength to you all and Effie is constantly in my prayers
$110
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$110
Moozie And Jean Van Niekerk
Lots of love to you all!! You’re all amazing!!! Jean and Moozie
$110
Tara Linton
Go Pajaron!!
$106
Billy Hyde
$106
Victoria Davies
Great work Pete!
$106
Adam Devereux
$106
Loz Humphrey
An inspiration Dom!
$106
Kristian & Tess
$106
Robyn Wilkinson-beards
Go Alexander
$106
Ellen Bourke
Great work Sue
$106
Hannah Jorcan
$106
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$106
Emma & Toby Taylor
$106
Denise Ferrier
Go Sam
$106
Adam Olarenshaw
$106
Maddy & Blake
$106
Dominic Garden
$106
Anna Bourne
$106
Hannah Robinson
$106
Nikki And Paul Cohen
$105
Gus Boyd
Good man - enjoy the humidity.
$105
P&j Nesbitt
Well done Sue. A very worthwhile cause to support.
$105
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$105
Sammy
Sending lots of love to Effie xx
$105
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$105
Eliza Mclaughlin
$101
Facebook Donation
$101
Sir William
$100
Suzanna Zhang
Great work Hoff! Sending love, hope and resilience to Effie 💗
$100
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$100
Facebook Donation
$100
Tyler Murphy
Forever thinking of you Rosie, Dom, Effie + Safa🩷🌸
$100
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$100
The Harmans
$100
Spc
$100
Facebook Donation
$91
Stephanie Collins
$91
Sue Mulcahy
$91
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$91
Donna Badura
$91
Harry Shirley
$90
Ana Amador
$88
Kieran Nolan
Well done, amazing cause x
$75
Mary Pell
$65
Brianna Lovejoy
$63
Des Oakhill
$63
Megan & Len
Amazing job guys 💕
$63
Maddy Weldon
$63
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$63
Kylie Dale
You're the best Dom ❤️
$63
Tash Langedyk
❤️ 🌼
$63
Anonymous
$63
Grace Withers
$63
Ed Russell
$63
Meggan Jenkins
$63
Kaye Holder
Great cause guys!
$63
Darren Flindell
You’ll certainly outrun our dog. Good luck good man
$63
Bec Barry
Well done Dom! This is incredible! Will definitely pick a flower for Effie on my next walk xx 🌸
$63
Jenny & David Ainger
Great effort Gabs!
$63
Scott Knowled
$63
Jenny & David Ainger
Great effort Harry!
$63
Jayne Ainger
Well done Harry!
$63
Jayne Ainger
Well done Gabs!
$63
Maddy & Chris Price
A great cause 😘 xxxxx
$63
Ben Hearn
$63
Iskra
Sending my love xoxo
$63
Sonia
Awesome cause Courtz, good luck with the walking.
$63
Cassie
$63
Denver Cres
Good luck Sue!
$63
Pedemonts Match
We’re proud to support your challenge to help kids with cancer.
$63
Mandy Mulcahy
Well done Sue, it’s a great way to highlight brain cancer and the research that is being done.
$63
Trudy Hutcheon
Sending love and strength to you all 🌸🌺🌼💐🌻🌹
$63
Dick
Great effort Harry!
$63
Lachlan Collins
$63
Jess And Nathan
You guys are superstars! Amazing work xx
$63
Rayhna Puche
You’re a powerhouse, Sue!
$63
Jade Singer
$63
Krista Ramirez
$63
Troy Maher
$63
Lizzy, Sam, Mila And Nieko
Big love to you all, Gardens 🌸🌻🪻🌼🪷
$63
Anonymous
$63
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$63
Ben Woollard
Run Sauce Run
$63
Anna
Sending all my love 💕
$63
Doug And Steph
Keep on fighting! We’re all with you!
$63
Norto
Great work Domma & Effie
$63
Anonymous
$63
Sharon Tilbrook
Good luck Gabby!
$63
Anonymous
❤️
$63
Hannah Hogarth
Go Steph, such an important cause x
$61
Samantha Patel
Go Fanny Go!! Such a great cause. Xo
$61
Shannon Radomski
$61
Ashlee, Justin Elsie & Nina
Great job Pete!
$60
Teagan Stuchbery
$60
Sam Harkin
Great work mate! 🏃🏻♂️
$60
Caroline Layton
Great work Sue - Good luck
$60
Facebook Donation
$60
Facebook Donation
$60
Loc Le
$53
Rosemaree Mccann
$53
Pedemonts Match
We’re proud to support your challenge to help kids with cancer.
$53
Emily Hunter
Amazing work Sammy!
$53
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$53
Kym Mctaggart
Great work Sam
$53
Sammy Radziejowski
Always so proud of you xo
$53
Blanche Manuel
$53
Kylie Atley
Good luck on the walk Dom sending you & your family strength & love
$53
Jess Holmes
Awesome job Captain, keep those km’s ticking & get those frontal thighs moving 😊
$53
Tara B
Well done Gabby! Such an important cause. Sending my love to all your family xxx
$53
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$53
Kaz
Sorry to see what Effie and your family are going through. All my best wishes your way.
$53
Anonymous
Taking the 'Bull' by the horns, well done Hoss.
$53
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$53
Sarah, Izzy’s Mum
It was so lovely to meet Effie, Safa and Rosie on my walk today! It touch my hear so deeply hearing your story, and gave Thomas and I a bounce to our step seeing you and sharing a hug and a tear. Hopefully our paths will cross again while we are in Coogee.
$53
Kate Redfearn
$53
Dylan Gunning
Unreal effort Pierre
$52
Felicity Pendergast
$52
Steph Bunque
$52
Cynthia
You’re absolutely fabulous Stephie! Sending so much love to Effie & her family! Xx
$52
Bella
$51
Steph O’brien
Great effort Sue! What a wonderful cause 💜
$51
Sophie Hensman
$51
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$51
Brittany Symons
Amazing work Gab! Lots of love to Effie and the family xx
$51
Lochie Gunning
$51
Facebook Donation
$50
Julie And David Whelan
Walking for a great cause Sam xx
$50
Patterson Yeo
Go Aunty Han. Love Patto xx
$50
Denae Henderson
$50
Pedemonts Match
We’re proud to support your challenge to help kids with cancer.
$50
Sarah Hill
$50
Pedemonts Match
We’re proud to support your challenge to help kids with cancer.
$50
Facebook Donation
$50
Amy Mckay
$50
Penny Dyson
$50
Suze Leahy
🩷
$50
Facebook Donation
$50
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$50
Nick Gouin
Great effort Downsy
$50
Donna
$50
Vicki Pankhurst
$50
Rachel O’meara
Move that coin!!!
$42
Simone Nolan
$42
Alexander Wilkinson-beards
$42
Ann Cormack
Go Sammy- great stufc
$42
Grace Sartori
$42
Anonymous
$42
Allie Mactier
$42
Tiffany Horton
Good work babes. X
$42
Sam Griffin
$42
Anonymous
$42
Georgia Nelson
$42
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$42
Virginia Van Deuren
$42
Susan Dobson
Good on you Price!
$42
Adam T
Big love from across the way mate. Thinking of little Effie and the family ❤️
$42
Teagan Morris
Great job Pete!! Sending love to Effie and her family.
$42
Florin Grigore
$42
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$42
Lisa Charlton
$42
Ben Stefanovic
$42
Ryan Vagg
$42
Sophie Bartley
So sorry to hear about poor little Effie. All our love and well and best wishes ❤️
$42
Katie Nilsson
$42
Kat Switala
Walk on Gabs! Doing a great thing for a fabulous cause
$42
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$42
John Trinchera
Great cause Peter keep shining mate Di Bella JT
$42
Anonymous
$42
Emma W-b
Good luck Alex, you're doing a great thing!
$42
Freya Briede
Good luck Xanthe, beautiful thing you are doing for your niece xx
$41
Sheridan Townrow
$41
Jack Troake
$40
Elsie, Joni & Bonnie
The girls raised this money with their mates at school, always thinking of you all and sending our love x
$40
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$40
Paulina Moxon
Sending love!!
$40
Cal Pitts
$40
Rhiarn Lockett
$40
Megan Flynn
Go Court & Noah 🌸
$32
Jill Switala
$26
Anonymous
$26
Elizabeth Hateley
$26
Pedemonts Match
We’re proud to support your challenge to help kids with cancer.
$26
Dale Jeffs
$26
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$26
Liz Switala
For Effie x
$26
Sue Paine
Run well Pete, for a great cause
$26
Lexi Meinhardt
$26
Matched Giving
We are proud to support your challenge to help kids with cancer.
$26
Facebook Donation
$26
Facebook Donation
$25
Shae Danilo
$25
Geoff And Helene Kiefel
$25
Phoebe Sinnett
Well done Court x
$22
Alana Knowles
What an amazing cause to get behind - go Alex!!
$21
Hannah Powell
Xxx
$21
Carol Hardcastle
$21
Anonymous
$21
Kickerts Jen Rudy
Good luck
$21
Brady Tipping
$21
Ashlee Vernon
$21
Amy Beckley
Good luck Alex! Great thing you are doing!
$21
Clare Greenwood
$21
Mckenzie Donnelly
I wish i couldn’t donate more but i hope things only go up for your beautiful family and it brings so much more awareness around this disease and can one day find a cure
$21
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$21
Liz, Russ, Gracie, Evy & Tori
Great work Gabby. Sending positive thoughts to Effie & family!
$21
Frankie And Hunter Schreder
Good luck Lexi!
$21
Bev Rankin
Run Ryan Run. Good on you.
$21
Lucy Kovacevic
Sending love and strength.
$21
Katherine Rankin
$21
Anonymous
$21
Jenni Pulford
$21
Jasper Rose
Found your story on instagram, thank you for sharing. Sending all the love 💗🎀
$21
Pedemonts Match
We’re proud to support your challenge to help kids with cancer.
$21
Anonymous
$21
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$21
Brooke Watts
$21
Lucy Goodman
$21
Facebook Donation
$21
Facebook Donation
$20
Peta Clark
$20
Anonymous
Sending healing prayers, love and light. Keep enjoying every moment.
$16
Anonymous
$16
Brickworks Match
We’re proud to support your challenge to help kids with cancer.
$11
Anonymous
$11
Anonymous
$11
Bree
$11
Pedemonts Match
We’re proud to support your challenge to help kids with cancer.
$5
Anonymous
Our Team Members
Dominic Garden
$25,443
Pete Downs
$6,020
Sue Mulcahy
$4,303
ryan vagg
$2,395
Harry Shirley
$2,126
Sam Griffin
$1,892
Andrea Van Niekerk
$1,630
Gabby Switala
$1,427
Xanthe Douglas-Garden
$1,223
Courtney Wood
$812
Stephanie Collins
$731
The Nolans'
$552
Ana Amador
$437
Jack Hyde
$412
Alexander Wilkinson-beards
$384
Lexi Meinhardt
$300
The Harmans
$182
Hannah Wisely
$165
