Flowers For Effie

We’re on a mission to help find a cure to childhood cancer!

OUR TEAM PROGRESS

19
Team
members

$54,137
Raised for kids
with cancer

1,584km
Conquered
together

Please help find a cure for the deadly DMG/DIPIG

You can follow Effie's story on IG @Flowers_For_Effie

www.instagram.com/flowers_for_effie/

I am taking part in the 86k for a Cure and dedicating my efforts to my 4 year old daughter Effie who is currently fighting Diffuse Midline Glioma (DMG) and dedicating the funds raised by Effie’s team to Levi’s Project who are dedicated to raising funds for research and clinical trials for children with DMG/DIPG. I want to pay it forward to the next family who is faced with this horrible disease. Our team is OPEN so if this story resonates with you and you would like to join our team we would love to have you. If you feel you can give up something this month to donate then please do so through the link to this page or through my page.

On every run I will be picking a flower for Effie and posting it @Flowers_For_Effie on social media with the link to this page and I encourage you to do the same, even if you don't join the team.

Effie was diagnosed on the 10/09/23 with a tumour in her brain; 8 days later and after 3 brain surgeries her neurosurgeon delivered the most devastating news that there was no known cure for Effie's disease, surgery was not an option. Our world came crashing down.

We were told that she has a DMG in her right thalamus; this is a rare and very aggressive tumour that is generally not diagnosed until it is at stage 4. In Australia, the only registered treatment for DMG is radiation therapy; Effie took that path as it has the highest chance of increasing life expectancy, although there was a 20% chance her tumour wouldn’t respond at all. If radiation therapy was unsuccessful, Effie would not have made it to the Christmas of 2023, if it was successful, the average life expectancy is a mere 9 months.

Thankfully for Effie, radiation therapy went as well as it could and gave Effie some much deserved extra time. We are using that time to create as many fun memories as possible and have chosen to enroll her into a clinical trial that is 800kms from home. The pressure of choosing the right path forward is enormous, if a trial takes 3 months to get through the first stage, that may be 30% of her remaining time. Being far from home means reduced time with friends and family.

In Australia, 26 kids are diagnosed every year and this disease is known for behaving differently in each child making it an extremely complex disease to draw conclusions from research, let alone effectively treating the disease. What is effective for one child isn't necessarily effective for another, however, worldwide there are a large number of trials being undertaken, all aimed at giving these kids a fighting chance.

Thankfully, Effie has been given the opportunity to be enrolled into a CAR-T cell trial here in Sydney Children’s Hospital at Randwick, right next door to CCIA. She is just the second child to be treated here with this ground breaking technology. Basically, part of Effie’s immune system has been modified to target and kill the tumour cells in her brain. Effie has undergone her first infusion of CAR-T cells and we have just received the results back on the 29th of February 2024. Incredibly we have seen a 30% reduction in the size of her tumour over the 7 week period she has been in the trial, obviously we are over the moon with this news. She still has a long road ahead as this last scan shows a new unidentified mass in a different location in her midline, the unpredictability of this disease leaves you with little control of your life.

The CAR-T cell therapy trial has been funded and set up by Levi’s Project.  Levi’s Project was started and is run by a family who sadly lost their little Levi all too soon to DIPG, a fate that Effie is also facing. They have made it their life’s work to raise funds and direct them into research and clinical trials here in Australia so families have another option and do not necessarily need to travel abroad. Our family is very grateful for the fundraising work that Levi’s Project has achieved in raising $4.6M over the past years, which is why the Flowers For Effie team is dedicating their 86k in March to Levi’s Project through the CCIA.

You can find their story here @levisproject

www.instagram.com/levisproject/

 

Please support me to help give Effie and all kids diagnosed with DMG/DIPG as many Christmases as we possibly can. We have set up an IG account so we can support Effie and raise awareness about DMG in children. If you can’t donate then simply share this page and our Instagram page is all that I ask.

You can find her story here @Flowers_For_Effie

www.instagram.com/flowers_for_effie/

 

Thanks for reading.

Our Achievements

Team Updates

Flowers For Effie new goal

Thursday 14th
Hi All

First of thank you for your support by either donating or joining the Flowers For Effie team, the team is coming in 3rd place on the leader board! The team has done much better than I ever expected so thank you.

When we set the target we wantedto make sure it was achievable and reached that target in a few days! I've decided to lift the target to see if we can cover the cost for one child being enrolled in the Levi's Catch trial, a rough break down is below.

$10k to enrol each patient into Levi's Catch trial
$15k for the 3 CSF tests per infusion to measure CAR-T cells
$5k per infusion to check the general health of CSF

On top of this there are MRI scans, anesthetics, medications and hospital stays to name a few, but the above costs are specific to the trial.

So the new target is $30k, let's see if we can get there!

Dom

Thank you to our Sponsors

$3.02k

Effie And Safa

$2.02k

Figgy

Sending love from Albury. X

$2k

Pedemonts Match

We’re proud to support your challenge to help kids with cancer.

$1.8k

Thyra Community Hub

Well down Dom and all supporting! Go team 💜

$1.11k

Luke And Kate Barlow

Good Friday gathering ran and walked 202 Km's. Distance covered by Dom, Ryan and Luke for March, 342.1 Km's. $2 per Km doesn't seem much but its just like your running, Small steps can make a big difference. You guys are amazing and always in our thoughts and prayers. Big hugs to you and your family.

$1.02k

Penni & Tim Douglas-garden

Run Dom Run

$1.02k

Griffos

XX

$1.02k

Alison Bourne

$1.02k

Gia & Ada

$1.02k

Hg Project Co

$1,000

Pedemonts Match

We’re proud to support your challenge to help kids with cancer.

$1,000

Bourne Family

$865

Andrea Vagg

$865

Pedemonts Match

We’re proud to support your challenge to help kids with cancer.

$520

Danni Falconer

🩵🩵

$520

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$520

Emily Kristine Pedersen

$520

Andrea, Ryan, Abi, Bella Vagg

We all missing you all and think of you all the time, can’t wait to see you soon

$520

Dodgshun Medlin

$516

Jerome Shirley

$501

Figgy Salon

Sending lots of love and picking every flower we see too. X

$501

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$500

Kate Wall

You’re a good egg Pete x

$500

Relieve And Revive Physiotherapy

May the force be with you.

$500

Lila & Heidi Downs

$500

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$500

Mulcahy Mechanics

$435

Andrea Vagg

$435

Pedemonts Match

We’re proud to support your challenge to help kids with cancer.

$317

Dallas Ludeman 0903 5429

Well done mate, enormous effort for a normally injured, retired sports star!

$317

Alison Bourne

$317

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$264

Colin Gair

$264

Anonymous

Great job Ryan!!

$264

Effie & Safa Garden

Love you

$264

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$264

Rinaldi’s

$264

Penny,ross,ruby And Poppy

What an incredible team . You guys are amazing . 💕💕💕Sending all our love . 💕💕💕

$264

Jeff Downs

Great job mate

$264

Dan And Steph Wilson

Inspiring guys, thinking of you so much

$261

Michael Diamond

$261

Skip & Jarvie

Great work Dom!

$261

Trav And Katy

❤️

$261

Pedemonts Match

We’re proud to support your challenge to help kids with cancer.

$261

Belinda And Rob Kerr

Great work Sue. We wish Effie and her family the very best of luck

$250

Richard Callander

Always a good man Pete. Good Luck.

$250

Chops & Sarah Mclean

Great effort Downsy for a beautiful cause!!

$211

Peter Allen

$211

Helen & Peter Sobey

$211

Barb & Gary O’dowd

Wear Effie’s friendship bracelet with pride Pete.

$211

Caleb Lewis

$211

Emma And Dan

Great work Dom!!

$211

Khia

Go mum and all the team. We love you Effie

$210

The Millers

Excellent stuff team! Xxx

$209

Joel Riddle

You da man Peter

$203

Facebook Donation

$203

Facebook Donation

$201

Two Billy Buttons

$201

Pedemonts Match

We’re proud to support your challenge to help kids with cancer.

$201

Jess Rankin

Go Granny 🏃‍♀️

$200

Sam Lewis

Great cause and good luck mate

$162

Kathryn Douglas

Thinking of all of you every day with lots of love, prayers & big hugs.

$162

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$158

Phandell

Inspirational. Sending all our love xx

$158

Dan Lassen

For Effie and all the others. Our hearts and prayers go out to you - Dan and Alex Lassen.

$158

P Grimwade

An amazing gesture for beautiful Effie, Downsy X

$158

Anonymous

$158

The Obriens

Great work Courts 🌺💕🌺💕

$158

Jennifer James

$158

Highton Automotive

$158

Katrina Shirley

Get running Gabs!

$158

Kate & Jimmy Thomas

Go Dom! Here supporting you every step you take!

$157

Georgi Kellock

Awesome work team Garden! Thinking of our dear friend Effie often. Your strength to get this done, share your story and advocate whilst you all face this incredibly tough journey, is so very inspiring. Big hugs and lots of love from Georgi, Mark and Gracie xx

$155

Lisa Downs

Run strong buddy! A great cause to support. Lots of love to Effie and family!

$153

Anonymous

$152

Facebook Donation

$151

Codie And Jack

We love Efffiee !!

$151

Anonymous

$151

Pedemonts Match

We’re proud to support your challenge to help kids with cancer.

$150

Anonymous

$150

Helen Spinks

$150

Jacqui Millar

$127

Andrea Van Niekerk

$127

Gabby Switala

$125

The Nolans'

$125

Courtney Wood

$113

Ryan Mulcahy

$113

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$111

Tully Spinks

$111

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$111

Kate

Your little girls are both beautiful. Hoping Effie’s treatment keeps working.

$111

Mike, Anna And Monty

Incredible Dom, all our love to you Effie, Rosie and Safa x

$111

Tom Fawcett

Well done Harry. Great work

$111

Deb & John Mckindlay

Great cause Sam. Hope it goes well.

$111

Jackson Cook

Well

$111

Tim Griffin

Go Sam

$111

Dan Casey

$111

Anonymous

$111

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$111

Phoebe Chandler

Absolute ledge, Dom! Sending all my extra leg power your way!

$111

Ross Berryman

$111

Sheila Douglas

Good on you Sam😃

$111

Brumby-rendell’s

Great work everybody! Love to Effie and her family ❤️

$111

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$111

Harry And Em

Great work Stephie, our thoughts are with the family xx

$111

Maartje Jansen

$111

Teegan Meade

$111

Hannah & Joe

Great work H!

$111

Janelle Couch

Good luck and well done on supporting such a great cause xx

$111

Robyn Wood

$111

Pat Helper

$111

Wayne Dooley

Good job :)

$111

Ange Walsh

Go Captain! ❤️

$111

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$110

Julie Griddin

$110

Kristine Halesworth

Welldone!

$110

Jasmin Ervin

🩷

$110

La Madre Bakery

Good luck Liz and Darcy for a very worthy cause.

$110

Tracy Savva

Sending lots of love and strength to you all and Effie is constantly in my prayers

$110

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$110

Moozie And Jean Van Niekerk

Lots of love to you all!! You’re all amazing!!! Jean and Moozie

$110

Tara Linton

Go Pajaron!!

$106

Billy Hyde

$106

Victoria Davies

Great work Pete!

$106

Adam Devereux

$106

Loz Humphrey

An inspiration Dom!

$106

Kristian & Tess

$106

Robyn Wilkinson-beards

Go Alexander

$106

Ellen Bourke

Great work Sue

$106

Hannah Jorcan

$106

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$106

Emma & Toby Taylor

$106

Denise Ferrier

Go Sam

$106

Adam Olarenshaw

$106

Maddy & Blake

$106

Dominic Garden

$106

Anna Bourne

$106

Hannah Robinson

$106

Nikki And Paul Cohen

$105

Gus Boyd

Good man - enjoy the humidity.

$105

P&j Nesbitt

Well done Sue. A very worthwhile cause to support.

$105

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$105

Sammy

Sending lots of love to Effie xx

$105

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$105

Eliza Mclaughlin

$101

Facebook Donation

$101

Sir William

$100

Suzanna Zhang

Great work Hoff! Sending love, hope and resilience to Effie 💗

$100

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$100

Facebook Donation

$100

Tyler Murphy

Forever thinking of you Rosie, Dom, Effie + Safa🩷🌸

$100

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$100

The Harmans

$100

Spc

$100

Facebook Donation

$91

Stephanie Collins

$91

Sue Mulcahy

$91

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$91

Donna Badura

$91

Harry Shirley

$90

Ana Amador

$88

Kieran Nolan

Well done, amazing cause x

$75

Mary Pell

$65

Brianna Lovejoy

$63

Des Oakhill

$63

Megan & Len

Amazing job guys 💕

$63

Maddy Weldon

$63

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$63

Kylie Dale

You're the best Dom ❤️

$63

Tash Langedyk

❤️ 🌼

$63

Anonymous

$63

Grace Withers

$63

Ed Russell

$63

Meggan Jenkins

$63

Kaye Holder

Great cause guys!

$63

Darren Flindell

You’ll certainly outrun our dog. Good luck good man

$63

Bec Barry

Well done Dom! This is incredible! Will definitely pick a flower for Effie on my next walk xx 🌸

$63

Jenny & David Ainger

Great effort Gabs!

$63

Scott Knowled

$63

Jenny & David Ainger

Great effort Harry!

$63

Jayne Ainger

Well done Harry!

$63

Jayne Ainger

Well done Gabs!

$63

Maddy & Chris Price

A great cause 😘 xxxxx

$63

Ben Hearn

$63

Iskra

Sending my love xoxo

$63

Sonia

Awesome cause Courtz, good luck with the walking.

$63

Cassie

$63

Denver Cres

Good luck Sue!

$63

Pedemonts Match

We’re proud to support your challenge to help kids with cancer.

$63

Mandy Mulcahy

Well done Sue, it’s a great way to highlight brain cancer and the research that is being done.

$63

Trudy Hutcheon

Sending love and strength to you all 🌸🌺🌼💐🌻🌹

$63

Dick

Great effort Harry!

$63

Lachlan Collins

$63

Jess And Nathan

You guys are superstars! Amazing work xx

$63

Rayhna Puche

You’re a powerhouse, Sue!

$63

Jade Singer

$63

Krista Ramirez

$63

Troy Maher

$63

Lizzy, Sam, Mila And Nieko

Big love to you all, Gardens 🌸🌻🪻🌼🪷

$63

Anonymous

$63

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$63

Ben Woollard

Run Sauce Run

$63

Anna

Sending all my love 💕

$63

Doug And Steph

Keep on fighting! We’re all with you!

$63

Norto

Great work Domma & Effie

$63

Anonymous

$63

Sharon Tilbrook

Good luck Gabby!

$63

Anonymous

❤️

$63

Hannah Hogarth

Go Steph, such an important cause x

$61

Samantha Patel

Go Fanny Go!! Such a great cause. Xo

$61

Shannon Radomski

$61

Ashlee, Justin Elsie & Nina

Great job Pete!

$60

Teagan Stuchbery

$60

Sam Harkin

Great work mate! 🏃🏻‍♂️

$60

Caroline Layton

Great work Sue - Good luck

$60

Facebook Donation

$60

Facebook Donation

$60

Loc Le

$53

Rosemaree Mccann

$53

Pedemonts Match

We’re proud to support your challenge to help kids with cancer.

$53

Emily Hunter

Amazing work Sammy!

$53

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$53

Kym Mctaggart

Great work Sam

$53

Sammy Radziejowski

Always so proud of you xo

$53

Blanche Manuel

$53

Kylie Atley

Good luck on the walk Dom sending you & your family strength & love

$53

Jess Holmes

Awesome job Captain, keep those km’s ticking & get those frontal thighs moving 😊

$53

Tara B

Well done Gabby! Such an important cause. Sending my love to all your family xxx

$53

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$53

Kaz

Sorry to see what Effie and your family are going through. All my best wishes your way.

$53

Anonymous

Taking the 'Bull' by the horns, well done Hoss.

$53

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$53

Sarah, Izzy’s Mum

It was so lovely to meet Effie, Safa and Rosie on my walk today! It touch my hear so deeply hearing your story, and gave Thomas and I a bounce to our step seeing you and sharing a hug and a tear. Hopefully our paths will cross again while we are in Coogee.

$53

Kate Redfearn

$53

Dylan Gunning

Unreal effort Pierre

$52

Felicity Pendergast

$52

Steph Bunque

$52

Cynthia

You’re absolutely fabulous Stephie! Sending so much love to Effie & her family! Xx

$52

Bella

$51

Steph O’brien

Great effort Sue! What a wonderful cause 💜

$51

Sophie Hensman

$51

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$51

Brittany Symons

Amazing work Gab! Lots of love to Effie and the family xx

$51

Lochie Gunning

$51

Facebook Donation

$50

Julie And David Whelan

Walking for a great cause Sam xx

$50

Patterson Yeo

Go Aunty Han. Love Patto xx

$50

Denae Henderson

$50

Pedemonts Match

We’re proud to support your challenge to help kids with cancer.

$50

Sarah Hill

$50

Pedemonts Match

We’re proud to support your challenge to help kids with cancer.

$50

Facebook Donation

$50

Amy Mckay

$50

Penny Dyson

$50

Suze Leahy

🩷

$50

Facebook Donation

$50

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$50

Nick Gouin

Great effort Downsy

$50

Donna

$50

Vicki Pankhurst

$50

Rachel O’meara

Move that coin!!!

$42

Simone Nolan

$42

Alexander Wilkinson-beards

$42

Ann Cormack

Go Sammy- great stufc

$42

Grace Sartori

$42

Anonymous

$42

Allie Mactier

$42

Tiffany Horton

Good work babes. X

$42

Sam Griffin

$42

Anonymous

$42

Georgia Nelson

$42

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$42

Virginia Van Deuren

$42

Susan Dobson

Good on you Price!

$42

Adam T

Big love from across the way mate. Thinking of little Effie and the family ❤️

$42

Teagan Morris

Great job Pete!! Sending love to Effie and her family.

$42

Florin Grigore

$42

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$42

Lisa Charlton

$42

Ben Stefanovic

$42

Ryan Vagg

$42

Sophie Bartley

So sorry to hear about poor little Effie. All our love and well and best wishes ❤️

$42

Katie Nilsson

$42

Kat Switala

Walk on Gabs! Doing a great thing for a fabulous cause

$42

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$42

John Trinchera

Great cause Peter keep shining mate Di Bella JT

$42

Anonymous

$42

Emma W-b

Good luck Alex, you're doing a great thing!

$42

Freya Briede

Good luck Xanthe, beautiful thing you are doing for your niece xx

$41

Sheridan Townrow

$41

Jack Troake

$40

Elsie, Joni & Bonnie

The girls raised this money with their mates at school, always thinking of you all and sending our love x

$40

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$40

Paulina Moxon

Sending love!!

$40

Cal Pitts

$40

Rhiarn Lockett

$40

Megan Flynn

Go Court & Noah 🌸

$32

Jill Switala

$26

Anonymous

$26

Elizabeth Hateley

$26

Pedemonts Match

We’re proud to support your challenge to help kids with cancer.

$26

Dale Jeffs

$26

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$26

Liz Switala

For Effie x

$26

Sue Paine

Run well Pete, for a great cause

$26

Lexi Meinhardt

$26

Matched Giving

We are proud to support your challenge to help kids with cancer.

$26

Facebook Donation

$26

Facebook Donation

$25

Shae Danilo

$25

Geoff And Helene Kiefel

$25

Phoebe Sinnett

Well done Court x

$22

Alana Knowles

What an amazing cause to get behind - go Alex!!

$21

Hannah Powell

Xxx

$21

Carol Hardcastle

$21

Anonymous

$21

Kickerts Jen Rudy

Good luck

$21

Brady Tipping

$21

Ashlee Vernon

$21

Amy Beckley

Good luck Alex! Great thing you are doing!

$21

Clare Greenwood

$21

Mckenzie Donnelly

I wish i couldn’t donate more but i hope things only go up for your beautiful family and it brings so much more awareness around this disease and can one day find a cure

$21

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$21

Liz, Russ, Gracie, Evy & Tori

Great work Gabby. Sending positive thoughts to Effie & family!

$21

Frankie And Hunter Schreder

Good luck Lexi!

$21

Bev Rankin

Run Ryan Run. Good on you.

$21

Lucy Kovacevic

Sending love and strength.

$21

Katherine Rankin

$21

Anonymous

$21

Jenni Pulford

$21

Jasper Rose

Found your story on instagram, thank you for sharing. Sending all the love 💗🎀

$21

Pedemonts Match

We’re proud to support your challenge to help kids with cancer.

$21

Anonymous

$21

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$21

Brooke Watts

$21

Lucy Goodman

$21

Facebook Donation

$21

Facebook Donation

$20

Peta Clark

$20

Anonymous

Sending healing prayers, love and light. Keep enjoying every moment.

$16

Anonymous

$16

Brickworks Match

We’re proud to support your challenge to help kids with cancer.

$11

Anonymous

$11

Anonymous

$11

Bree

$11

Pedemonts Match

We’re proud to support your challenge to help kids with cancer.

$5

Anonymous

Show more

Our Team Members